What a year!
It began with a gang buster, a great January and February where I felt quite well and increased my hours at work. Not that I had the energy of an 18 year old, but I did have enough energy to be engaged in work, Church, house, children and family, with some left over at the end of the day. I was riding a wave in the gleaming sun, and it was great.
Then it happened. Something went awry in April, and big time. I was brutally fatigued, such that for a month and a half I barely came out of my bedroom; I also lost a lot of weight, and upon visiting my oncologist, I found out that a tumor marker was going up and something had to be done. For the next two months we embarked on the Great Tumor Adventure, with multiple scans, an endoscope and colonosopy and, almost on a whim, an operation to remove four lymph nodes that had lit up on a PET scan after a biopsy was inconclusive.
It was all negative, and they said: go home, we’ll scan you in three months, so home we went.
We started it all up again in September but only this time on steroids. Not only was the tumor marker up, it was way up. Another crazy, insane walk through the medical world: tests and more tests, and at last we found the culprit: a growth on my left side about an inch by an inch and a half that lit up on a yet another PET scan. The Great Tumor Adventure was over. We had found our man. Off to see the doctors and get their opinions, and then to get second opinions. All agreed the growth was cancerous, and I even did a work-up for radiation: tattoos on both side and stickers down my back, and we scheduled my radiation treatments every day for the next two weeks.
For many reasons, it was virtually impossible to get a biopsy of the thing on my side during this time. My doctor had gone on vacation and forgot to order it, then was doing rounds the following week, and when they did schedule me it was after my radiation treatment began – oops, a little too late – so I said “forget it all” and went to Roswell in Buffalo for the biopsy, which would come back before the radiation started. It came back on a Thursday, and I was supposed to start treatment on Monday.
It was negative.
Everything came to a halt. The train jumped the tracks, all the appointments were canceled and once again I was told to go home; we’ll scan you in six weeks and see if the tumor has grown. During this time, my left side (where the growth was) started to hurt and the pain got worse. It got so bad that I could not sit, and sleeping was very difficult. There could only be one conclusion, I thought: the growth had grown, so wasn’t I surprised when the scan results came back, and the growth had not grown – not at all!
I was surprised. What other way could we understand what was happening to me. It was great that it didn’t grow, but the question is: why was my side hurting?
Another mystery.
Nothing went my way this year, in a manner of speaking, but of course with God it all went my way. He worked in mysterious ways, because I also – along with my side pain – had shingle-like pain across my front but with no rash. Shingles normally comes with a rash. We talk to the doctor and maybe it is shingles with no rash – it can happen but it’s rare. With me, anything is possible. Apparently the thing in my side activated the shingles lying dormant in my body, so it just had to make its appearance in – you guessed it – the year 2017, along with all the other crazy stuff.
Fortunately, the medicine they put me on helped. All is going well now, and we’re living life up once again in three month increments, and did I tell you my doctor thought the biopsy in November was bogus, as do I. (Yes, I had them mail it to me and read every line of it.) What does all this mean? Who knows! That is for a future chapter in the Stahl Medical Saga, to come out in 2018.
I do know for now I’m breathing and it looks like I made it to 2018; what could be better?